You may, or may not know this already but I can’t walk. I’m not totally immobile, I can walk around my home a little and with aids like a zimmer frame, rollator, crutches or walking sticks, but when I’m outside I always have my wheelchair. I have stiff person syndrome and my lower limbs and…
Search Results for: stiff person syndrome
Preparing for a Miracle
I wrote a blog post and my daughter, Boo, leaned over my shoulder and I was horrified. I told her to go away and not to read what I was writing over my shoulder, I said she was rude. I made her cry. I comforted her and then read back what I’d written. I’d poured…
Word of the Week – Appointments
This week has been all about appointments.My eldest son had a GP appointment and an appointment at the bank.Hubby has a dentist appointment today.My daughter had her regular appointment with the nurse on Wednesday and while we were there we talked about the Little Man and now he has a referral and an appointment in…
Keep on Hoping, Keep on Wishing but Most of all Keep on Believing
Last week I went to A&E because I really thought there was something wrong with my heart. It felt like someone was sitting on my chest, crushing me and making it hard for me to breathe. I called my GP but I was told to go straight to A&E. I was given a red card…
One In A Million
I’ve just finished reading One In a Million by Jaqui Atkinson I read it in two days, it was really difficult to put down. Here is the ‘blurb’ Imagine all of your muscles going into spasm, and being unable to move a single part of your body. Imagine being in excruciating pain. Then imagine how…