Regrouping I think when it comes to my health I am regrouping things all the time, it’s always a game of catch up. It’s hard sometimes to prioritise so things go astray, but occasionally I have to regroup and get it all back together again. I guess it’s the same for everyone, we all fall…
Search Results for: stiff person syndrome
Show Your Rare – Make Them Listen
Today is Rare Disease Day. I’ve written lots on my rare condition and also Star’s condition, but today I wanted to write about getting help when you are rare. Star Way back in 2013, Star woke up one day with a wonky neck. I took her to the GP who said to take her to…
Life With a Chronic Illness
I’m linking up to A Chronic Voice Link up Party for people with Chronic Illnesses, and following the prompts for February. Adjusting I already have a post in my drafts about this which I’ll probably never publish. Adjusting can be so difficult sometimes and, hands up, I’ve been having problems. It’s the simple things, filling…
Flu, Strains, Hunger Tales and Conkers
If you thought last weeks post was a downer, then you’ve not heard the worst. I left you with two kids down, off school sick but it didn’t stop there. It turned out to be some kind of gastric flu, fever, congestion, upset tums, headaches…and general all round feeling bloomin’ awful. Star and Boo barely…
What it is like Living with a Chronic Illness
I can’t speak for everyone because we are all different. But living with a chronic illness is often misunderstood. Imagine that the next time you get one of those horrid colds that knock you off your feet, disturb your sleep and make you feel like crap for a few days. Then you get better and…