Hello and welcome to the home of Word of the Week. A nice and simple weekly linky, with everyone welcome to pop by and share. The idea of the linky is to reflect back on your past week and share it with us. It’s great if you can sum it up in a word or phrase, hence giving us your Word of the Week. My word this week is ‘Busier’ and you can read more about that below.
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MY WORD OF THE WEEK – Busier
Last week I chose the word Lazy, but this week I’ve been a little busier.
I started the week with a visit from a psychologist to assess my Little Man for his EHCP. It seemed that she was assessing his intelligence, but doing a few tests like that won’t tell her much at all. He is clever, his use of language is extensive, he knows maths really well and he can solve puzzles. He was co-operative and chatty. It was a good day. Seriously, we don’t get many of those, but that’s what will go in his report. I’m not holding out much hope for any help now. It’s so hard when you have a child that breaks the mould. A little example, she asked him if he could cope with noise in the classroom he said ‘yes.’ I butted in and said, ‘so if all the children in the class were chattering at the same time you’d be fine?’ ‘No’ He said, ‘that would make me very uncomfortable and I would want to leave, but I’d be ok if there was a noise from the radiators or air conditioning.’ It’s just a minefield. You can’t judge a child’s needs on a few questions and simple tests which occur on a ‘good’ day. There will be other things taken into consideration but I’m not holding my breath. I hate that I have to fight for my kids every day as well as having to deal with my own problems. (Ok I’ll get off my soapbox now.)
Then I went for a drive. I’m getting more confident, I actually made it all the way to the local supermarket which was quite and achievement (and further than the Little Man’s previous school, not that it matters any more.) I wanted to drive more but it seems that Graham keeps getting sick and is unable to take me out. It’s really frustrating but I’m not confident to go alone yet and there isn’t anyone else. ( I need someone on my insurance in case I can’t drive anymore for any reason.)
I also went shopping with my daughter to a supermarket. I spent way more than I wanted too, but I did treat myself to a book as well. It was a good trip, the Little Man came too, but it was really tiring. I remember the days when I would enjoy a good supermarket trip, now it’s like running a marathon. I did venture down the Christmas aisle, but I’m not feeling it yet.
Other things I’ve been busier with are housework, ah it never ends, and writing. I have actually been writing a book about my illness and I recently found a platform, Substack, where I’m sharing some extracts of my writing to see if anyone would actually be interested in reading them. It’s also given me an idea of how I need to improve my story and make it more readable and while I’m sharing I’m also editing my book.
Now it’s over to you, what word or phrase sums up your week this week?
Well, congrats on getting on with your book! And glad you got the chance to venture out some more and farther too. I hope that your son gets the help he deserves. So good that you were there to help define things for him. Have a lovely weekend and a great week ahead.
It sounds like the meeting with the psychologist was frustrating. Specialists can’t judge a child just from a one off meeting. Sending love and hugs.
Well done with the driving. It sounds like you are building your confidence though, you’ll get there, I’m sure.
I have been reading your Substack, good luck with your book. x
Thank you Kim.
The way they judge a child’s needs for an EHCP is ridiculous. As you know it has to be worst case scenario or no help. Bless your Little Man though I’m glad he was having a good day. It’s just such a shame they never look any deeper. We shouldn’t have to fight for everything, it isn’t right. I shall go and have a look at your Substack!
I’ve already been to tribunal and I’m still not holding out much hope to be honest. I just want to find a school for him 🙁
Hope that Little Man does get more help via the EHCP. It’s good that you’re getting more confident with driving again but I can imagine it’s frustrating not being able to get out more. Good luck with writing your book. #WotW
You’re right, housework never ends – sadly! Fab news on the driving though – thanks for sharing with #PoCoLo
I hope you’ve got good support from school with your sons EHCP. I keep trying to feel Christmas and have been out looking at things but can’t get going at home just yet. Thanks for linking up with #pocolo